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"Caregiver burden"

Review Article
The burdens faced by parents of preschoolers with type 1 diabetes mellitus: an integrative review
Sunyeob Choi, Hyewon Shin
Child Health Nurs Res 2023;29(3):166-181.   Published online July 31, 2023
DOI: https://doi.org/10.4094/chnr.2023.29.3.166
Purpose
This study examined the literature concerning the burdens of parents of preschool-aged children diagnosed with type 1 diabetes mellitus.
Methods
We employed an integrative review methodology based on Whittemore and Knafl's framework. The literature search was conducted using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines across four electronic databases: PubMed, Web of Science, the Cumulative Index to Nursing Allied Health Literature (CINAHL), and PsycINFO. Ultimately, 18 articles were included in the review.
Results
The review yielded four themes: (1) parental burdens, (2) factors related to the burdens, (3) coping strategies, and (4) implications for clinical practice. Parents experienced psychological, physical, and social burdens due to the diabetes care of their children. Several factors influenced burdens, including child-related characteristics such as age, severity of diabetes, and hospitalization experience, as well as parental factors like family income, race, and residential area. Parents initially felt burdened when their child was diagnosed with type 1 diabetes, but over time, they often adapted to the situation through support and sharing of responsibilities. Parents desired education and interventions reflecting the unique characteristics of preschoolers.
Conclusion
This integrative literature review revealed that parents experience numerous burdens when their child is diagnosed with diabetes. Future research should focus on developing interventions to address parents' psychological difficulties, including tracking parental psychological changes over time. Tailored nursing interventions should also be provided to parents of preschool-aged children, as opposed to the more generic nursing interventions traditionally applied across all age groups of children in clinical settings.

Citations

Citations to this article as recorded by  
  • Distinguishing risk factors for depression and burnout in parents managing type 1 diabetes mellitus in children
    Sumbule Koksoy Vayisoglu, Ebru Koc, Emine Oncu
    Journal of Pediatric Nursing.2025; 80: 32.     CrossRef
  • Factors affecting care burden and life satisfaction among parents of children with type 1 diabetes
    Tuğba Bilgehan, Ezgi Bağrıaçık, Münevver Sönmez
    Journal of Pediatric Nursing.2024; 77: e394.     CrossRef
  • Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3–13
    Ian Litchfield, Lauren M. Quinn, Felicity Boardman, Olga Boiko, Parth Narendran, Shivam Choundhary, Naga Setti, Veer Sheth, Sheila M. Greenfield
    Health Expectations.2024;[Epub]     CrossRef
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